Published by the International Child Neurology Association

The Child Neurology Knowledge Environment

Friday
Mar 12th

International Child Neurology Associaton

Newsletter September 2009

This edition of the Newsletter has been delayed to include details of the ICNA Executive Board Meeting held in Kyiv, Ukraine on 8-9 September, 2009. Some important changes to the electoral process were agreed upon, and it is hoped that the ICNA Membership will endorse these to produce a more equitable electoral process.

This is the third edition of the Newsletter to be distributed electronically via email and ICNApedia, and not by paper copy. I wrote letters last time to a small number of members who did not have email addresses, offering to send paper copies but none requested these. If you are aware of any members who cannot access the Newsletter, please inform me on their behalf. Our list of emails is at times incorrect, and it is vital that you notify the Treasurer or me if you change your address or if you fi nd you can access this only by ICNApedia.

I remain committed to publishing details of all National and Regional Conferences and Activities. Please inform me of any such matters. There is an excellent article in this issue on Child Neurology in Turkey by Banu Anlar and Haluk Topaloglu.

 wilkinson.jpg
Ian Wilkinson
Editor

In this issue




Progressive Myoclonic Epilepsies in the new millenium - From Marseille to Venice
Fondazione Mariani   
pme.jpgPME 2010: An International Symposium on Progressive Myoclonus Epilepsies (PME’S) in the New Millennium will be held in San Servolo, Venice, Italy from April 28th to May 1st, 2010, promoted by the Mariani Foundation
 
8th International Congress on Cerebral Palsy September 1-4, 2010 in Ljubljana, Slovenia.
Milivoj Velickovic Perat   
poster160a.thumb.jpgIt is a great pleasure to invite you to participate in the 8th International Congress on Cerebral Palsy, which will take place from September 1-4, 2010 in Ljubljana, Slovenia.
 
ICF Core Sets for Children and Youth with Cerebral Palsy: The Global Expert Survey Project
ICNApedia   
The research group at the Child and Family Research Institute,  University of British Columbia is inviting experts to participate in an important research regarding the World Health Organization (WHO)’s International Classification of Functioning, Disability and Health (ICF) as it relates to children and youth with motor impairments, specifically cerebral palsy (CP). 
 
Election of ICNA Officers and Executive Board Members
Yoshiyuki Suzuki   
icna_board_election.gifThe ICNA Executive Board has decided to start a new electronic system for nomination and election of Officers (President, Secretary, Treasurer) and Executive Board members, based on the report of the ICNA Nominating Committee. The Committee members are Yoshiyuki Suzuki (Japan; Chair), Peter Baxter (UK), Orvar Eeg-Olofsson (Sweden), William Logan (Canada), Ignacio Pascual Castroviejo (Spain), Sergio Rosemberg (Brazil), Pratibha Singhi (India), Ian Wilkinson (Australia), and Xiru Wu (China). The Nominating Committee will perform the task in collaboration with Electoral Reform Services (ERS; http://www.erbs.co.uk/).
 
Updated Scientific Program for XIth World Congress of ICNA in Cairo, May 2-7, 2010
ICNA   

alexandria.jpgThis 11th International Congress of Child Neurology will convene a large international faculty with recognized expertise in a wide array of disciplines within Child Neurology spanning the breadth of the topics from ’ cell to cognition’ and highlighting underlying basic pathophysiological mechanisms and treatment strategies.  The faculty will present novel and current aspects of the ‘cutting edge’ science and ‘art’ of Child Neurology, including a global perspective on the significant burden of neurological diseases in the Developing World. 

The programme is designed for physician practitioners, clinical and basic scientists, trainees, nurses, speech therapists, physiotherapists, occupational therapists, neuropsychologists, and other allied health care professionals within the field of Child Neurology and Neurosciences. We look forward to your participation in this exciting, comprehensive, and highly interactive program.


 
The 2010 JSCN International Education Fellowship
ICNApedia   
The Japanese Society of Child Neurology (JSCN) has established an annual fellowship program for promotion of child neurology in the Asian-Oceanian countries. One or two young child neurologists will be invited every year to attend the JSCN annual meeting and to make a short visit, either before or after the meeting, to selected medical institutions in Japan.
 
International Workshop on Dravet Syndrome Verona, October 4-6, 2009
ICNA   

verona.jpgWe are pleased to invite you to the Workshop we are organizing in Verona (Italy) from Sunday October 4th to Tuesday October 6th 2009.
This Workshop will be the first to be devoted to Dravet syndrome. We are planning to discuss current knowledge about the syndrome with the purpose of promoting a step towards improving clinical management, research strategies, pharmacological and non pharmacological treatment and care.

About 30 eminent international experts from Argentina, Australia, Belgium, Canada, France, Italy, Japan and the USA who have contributed to shape our current understanding of this syndrome will compare their experiences and assumptions. Representatives of patients' families will also participate and share their testimonies.

We look forward to welcoming you in Verona!


The Scientific Committee
Charlotte DRAVET
Marseille, France

Bernardo DALLA BERNARDINA
Verona, Italy

Michelle BUREAU
Marseille, France

Renzo GUERRINI
Florence, Italy

For further information, please contact the
Organizing Secretariat
PTS Congressi-Maura Stella
Phone: +39 06 85355590
Fax:  +39 06 85356060
e-mail: This e-mail address is being protected from spam bots, you need JavaScript enabled to view it

http://www.ptsroma.it/dravet2009/

 
Action Duchenne International Conference
ICNApedia   
action-duchenne.gifThe annual two day Action Duchenne International Conference is scheduled for 23 - 24 October 2009 and will be held in the Holiday Inn, Bloomsbury London.
This is the 7th annual conference from Action Duchenne and will include top researchers and experts in Duchenne. Please visit www.actionduchenne.org for more details
 
9th European Congress on Epileptology Website is now live
ICNApedia   
rhodes-congress.gifThe next European Congress on Epileptology will take place in Rhodes, Greece from the 27th June to the 1st July 2010. Please visit the new website for all current information and updates.
 
Gene expression to neurobiology and behaviour: Human Brain development and developmental disorders
ICNApedia   
genes_brain_development.jpgThe European Science Federation Research Conference on "GENE EXPRESSION TO NEUROBIOLOGY AND BEHAVIOUR: HUMAN BRAIN DEVELOPMENT AND DEVELOPMENTAL DISORDERS"
Chaired by ProfessorJanette Atkinson, University College LondonPsychology/Institute of Cognitive Neuroscience Visual Development Unit, London, United Kingdom, will take place in Sant Feliu de Guixols, on the Spanish Costa Brava from 20-25 September 2009
 
AACPDM 63rd Annual Meeting
ICNApedia   

aacpdm_logo_overlay.gifThe American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) is delighted to host the 63rd annual meeting in sunny Scottsdale, Arizona, on Spetember 23-26, 2009 at the Westin Kierland Resort and Spa.

Each year, AACPDM Annual Meetings provide high-quality dissemination of information in the basic sciences, prevention, diagnosis, treatment and technical advances as applied to persons with cerebral palsy and developmental disorders.

We are pleased to announce that our 2009 Annual Meeting focus is on Frontiers of Innovation: Combining Technology and Therapy to Improve Outcomes. The Scientific Program will include high-quality Plenary Sessions, Free Paper Sessions, Point/Counter Point Debates, and Instructional Course Lectures. The Poster session will include over 100 Scientific, Demonstration and Student Posters. We will also feature the popular "Breakfast with the Experts" sessions on Thursday and Friday. These one-hour sessions are a unique opportunity to focus on subjects that are new, innovative and often controversial. Breakfast sessions are limited to only 50 participants per session and feature a real Southwest "ranch-style" breakfast.

June 2009
Preliminary Program Available
Registration Opens

August 18, 2009
Early Bird Registration Deadline

August 22, 2009
AACPDM Hotel Room Block Deadline

September 1, 2009
Advance Registration Deadline

 

Visit http://www.aacpdm.org to register !

 
7th International Myotonic Dystrophy Consortium Meeting Wurzburg, September 9-12, 2009
ICNApedia   
dm1congress.jpgThe International Myotonic Dystrophy Consortium (IDMC) congress will cover a broad range of topics, including historic perspectives on both DM1 and DM2, mechanisms of disease pathogenesis and instability of the underlying DNA mutations, and advances in treatment of these multisystem disorders.


 
British Inherited Metabolic Disease Group Annual Symposium 2009
British Inherited Metabolic Disease Group   

British Inherited Metabolic Disease Group

The Annual Symposium incorporates a symposium with guest lectures and contributions from Group members , Trainees' and Nurses' meetings, the group's AGM and a conference dinner.

This year's general topic:  Genetic Metabolic Disorders that can be Treated with Vitamins or Co-Factors

Treatment with a vitamin or cofactor can be dramatically effective in some children who present with severe acidosis, hyperammonaemia, acute encephalopathy, seizures, hypotonia, neurodevelopmental delay or regression. This course is for those who want to be able to identify these patients and treat them effectively with the vitamin / cofactor and, where necessary, adjunctive treatments such as an appropriate diet.

The course is aimed at members of the BIMDG (including specialist nurses, dietitians and biochemists) but non-members are welcome, numbers permitting.

 
UK SMA Researchers Conference 2009 , 5th-6th October 2009, Edinburgh
Jennifer Trust for SMA and SMA Trust   

 jennifertrust.jpg

The 6th UK SMA Research Conference is jointly funded by the Jennifer Trust for SMA and the SMA Trust.
All those wishing to attend the meeting, whether or not they are submitting an abstract, must register via email by Fri 31st July.A call for abstracts has been made and the deadline for these is Friday 28th August 2009.
Venue: Royal College of Surgeons, Edinburgh
(Symposium Hall: http://www.surgeonshallcomplex.com/)

 
1st International Congress on Clinical Neuroepidemiology 27th - 30th August 2009
ICNApedia   
 iccn2009.pngThe First International Congress on Clinical Neurology and Epidemiology (Neuroepidemiology) scheduled to take place in Munich, Germany in August 27-30, 2009 is a unique congress for many reasons.