ICNC2018 Abstracts & Symposia Proposals, ICNC 2014

Font Size: 
QUALITY OF LIFE OF FILIPINO CHILDREN WITH EPILEPSY AGED 5-12 YEARS OLD using PedsQL TM 4.0
Philomine Daphne Patricio Obligar

Last modified: 2014-04-03

Abstract


Background:

Epilepsy is a chronic neurological condition with numerous social and psychological consequences. In children, epilepsy can cause low self esteem compared to children with other chronic conditions such as asthma or diabetes. The use of quality of life measures in epilepsy is relatively recent compared with that of other chronic conditions particularly within the pediatric population

Objectives:

This study aims to assess the health related quality of life among children with epilepsy  aged 5-12 years at Philippine Children’s Medical Center.

Methods:

This is a cross sectional study. Health related quality of life was measured using PedsQL generic score questionnaire.

Statistical Analysis:

Mean scores per domain and overall mean scores were obtained and compared. T- test, Chi square and logistic regression was used for the analysis of data and association and determination of predictors for poor quality of life..

Results:

A total of 117 children with epilepsy aged 5-12 years old and their carefiver were evaluated.  Total overall mean PedsQL was 70.44 while for parents was 67.66. Physical functioning has the highest score while school functioning has the lowest mean score. The means scores are comparable with that of patients with chronic Illness.

Conclusion:

Almost 50 % of children with epilepsy had poor quality of life. There was good correlation between child self report and parent proxy report. Predictors to a poor quality of life were male sex, on Phenobarbital and uncontrolled seizures.

 


Keywords


Quality of life, Epilepsy, PedsQl

References


1.Sabbagh, S., C. Soria, et al. Impact of Epilepsy characteristic and behavioural problem on school placement in children. Epilepsy and Behavior, 2006,9;573-578.

 

2.Dulac, O.  "Issues in paediatric epilepsy." Acta Neuroligica Scandinavica ,2005(Suppl. 182): 9 - 11.

 

3.Ekinci, O., Titus, Jeffrey, B., Rodopman, Ayse, A., Berkem, Meral., & Trevathan, Edwin.. "Depression and Anxiety in children and adolescents with epilepsy: Prevalence, risk factors, and treatment." Epilepsy & Behavior,2009: 8 - 18.

 

4.Moffat, C., Dorris, L et al. The impact of Childhood epilepsy on quality of Life: Qualitative investigation using focus group methods to obtain children’s perspectives on living with epilepsy. Epilepsy and Behavior, 2009, 14;179-189.

 

5.Varni, J.W., et al. The PedsQLÔ 4.0: Reliability and validity of the Pediatric Quality of Life InventoryÔ Version 4.0 Generic Core Scales in healthy and patient populations.  Medical Care, 2001; 39(8): 800-812.

6.Ronen, G, Streiner, D., et al. Health-relate quality of life in childhood epilepsy:Moving beyond seizure control with minimal adverse effects.Health and Quality of Life Outcomes, 2003I:36.

7.Soria, C. Callu, D. et al. Parenteral repory of cognitive difficulty, quality of life and rehabilitation in children with epilepsy or treated for brain tumors. Developmental Neurorehabilitation,2008,11(4);268-275.

7.Sosa, M. Health related quality of life in pediatric patients with Epilepsy.2005. Unpublished.

9.Vona, P, Siddarth, P, et al. Obstacles to Mental Health care in pediatric Epilepsy. Insight from parents. Epilepsy and Behaviour, 2009,14:360-366.

10.Chio, H, Hsich, L, et al. Comparative study of children self concept and parenteral stress between families of children with epilepsy and asthma. Journal of Nursing Research, 2008, 16(1);65-73.

11.Varni, J.W., et al.,  The PedsQLÔ 4.0 Generic Core Scales: Sensitivity, responsiveness, and impact on clinical decision-making. Journal of Behavioral Medicine, 2002:25, 175-193.

 

12.Varni, J.W., et al. The PedsQLÔ 4.0 as a pediatric population health measure: Feasibility, reliability, and validity. Ambulatory Pediatrics, 2003:, 329-341.

 

13Felder-Puig, R., Frey, et al. Validation of the German version of the Pediatric quality of life inventory (PedsQL TM) in childhood cancer patients off treatment and children with epilepsy. Quality of life research, 2004.13:223-234.

 

14Haneef, Z., Grant, M. et al. Correlation between child and parental perceptions of health-related quality of life inepilepsyusingthePedsQL.v4.0 measurement model. Epileptic Disord 2010; 12 (4): 275-82

 

15 Modi, A, King, A. et al. Even a single seizure negatively impacts pediatric health –related quality of life. Epilepsia,2009, 50(9)2110-2116

 

16. Malinit, Joy, M.D. Quality of life in Children with psychiatric disorders: A validation Study of the Pediatric Quality of Inventory PedsQL. 2006.Unpublished

 

17.ILAE.(Blume,W)Glossary of descriptive terminology for Ictal semiology

Epilepsia,2001.42(9),1212-1218.

 

18 Kwan,p,et al, Definition of drug resistant epilepsy. Consensus proposal

by the ad hoc Task Force of the ILAE Commission on Therapeutic Strategies. Epilepsia. 2009.1528-1167.

 

19 Lagunju,IA., Akinyinka,O., et al. Health Related quality of Life of Nigerian Children with Epilepsy. African Journal of Neurological sciences.2009.Vol.28,No.1pp4, 1992-2647

 

20 Huang, I, Thomas, L, et al.The Linkage between Pediatric Quality of Life and Health

Conditions: Establishing Clinically Meaningful Cut-off Scores for the PedsQL. Value health, 2009., vol 12, No. 5, 773-785

 

21Miller,V.,Palermo,T.M.,et al. Quality of Life in Pediatric Epilepsy:Demographic and

disease-related predictors and comparison with healthy controls. Epilepsy &

Behavior,2003.Vol.4,No.1,pp.36-42.

 

22Talarska, D. Usefulness of Quality of Life childhood epilepsy (QOLCE) questionnaires in evaluating the quality of life of children with Epilepsy.Advances in Medical Sciences,  2007. Vol 52;191-193

23.Carpay, HA, Vermeulen, J., Stoink, H. eta al. Disability due to restrictions in childhood epilepsy. Dev Med Child Neurol .1997;39:521-526

24.Agrrawal, A, Quality of life of Children with Epilepsy. Indian Pediatrics, 2011, Vol 48,893-896.

 

25.Sherman, E., Griffiths, S., Akdang, S. et al., Demographic correlates of health     related quality of life in pediatric epilepsy. Epilepsy and Behavior,2008.12,96-101.

 

26.Guekht, Alla, Factors influencing the quality of life in people with epilepsy. Seizure, 2007.16, 128-133.

27.Sabaz M., Lawson JA, cairns DR, Duchowny MS, et al, Validation of quality of Life in childhood Epilepsy questionnaire in American epilepsy patients. Epilepsy Behavior 4:680-691


Conference registration is required in order to view papers.