ICNC2018 Abstracts & Symposia Proposals, ICNC 2014

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Assessment of the Implementation of the Epilepsy Quality Measures in the Commission for Children with Special Health Care Needs (CCSHCN)
Alejandra Maria Stewart, Muhammad Affan, Heather Mckee, Gulam Khan, Robert Baumann, Meriem Bensalem-Owen

Last modified: 2014-04-03

Abstract


Rationale: The purpose of this study was to assess the application of the recently developed 8 epilepsy quality metrics in a primarily rural and Appalachian system of clinics conducted at the Kentucky (CCHCN).

Methods: Retrospective review of clinical charts from the CCSHCN between November 2013 to January 2013. Measures assessed were: seizure type and frequency, epilepsy etiology or syndrome, electroencephalogram (EEG), brain imaging, antiepileptic drug side effects, surgery referral, safety counseling, folic acid supplementation, and counseling of childbearing potential patients.

Results: We identified 81 children with epilepsy; aged 1 to 21 yo (mean age 9.6 years) 46 males and 35 females. The seizure type and frequency were addressed in 98.8%. Epilepsy etiology or syndrome in 96.3%. EEG reviewed or requested in 97.5%. Brain imaging was reviewed or requested in 79%. Antiepileptic drug side effects were addressed in 59.3%. Epilepsy surgery evaluation and referral was 3.7% of the 23 patients with drug resistant epilepsy. Documentation regarding safety counseling was 25% of patients. Of the 19 patients with childbearing potential counseling was documented in 40% and folic acid supplementation was addressed in 33%.

Conclusion: In this study, a sub-set of quality measures had a high rate of compliance. For other measures with lower rates of compliance it is unclear if the measures, as currently formulated, are appropriate for pediatric clinics. While charts routinely included information about child educational status, it is not included in the quality guidelines. We suggest that pediatric clinics require a revised sub-set of quality guidelines for epilepsy.

 


References


1.Pugh MJ, Berlowitz DR, Montouris G, et al. What constitutes high quality of care for adults with epilepsy? Neurology. 2007 Nov 20; 69(21): 2020-7. 2.Fountain NB, Van Ness PC, Swain-Eng R, et al. Quality improvement in neurology: AAN epilepsy quality measures: Report of the Quality Measurement and Reporting Subcommittee of the American Academy of Neurology. Neurology. 2011 Jan 4; 76(1): 94.9. 3.McKee H, Youssefi J, Bensalem-Owen M. Implementation of Quality Measures in the Neurology Residents’ Clinic: Experience in a Single Institution. Neurology. 2013 Feb12; 80(Meeting Abstracts 1): P03.121. Presented at the 65th Annual Meeting of the American Academy of Neurology, March 2013. 4.Russ SA, Larson K, Halfon N. A national profile of childhood epilepsy and seizure disorder. Pediatrics 2012;129:256e64.5.  Veeravigrom M, Beth C. F,Ronald, Lalitha S. Adherence to Quality Measures in a Pediatric Epilepsy Center: A Pilot Study. Pediatric Neurology 48 (2013) 291e293

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