Last modified: 2018-09-09
Abstract
Objective: The objective of our study was to validate the content of ICF core sets for children and youth with Cerebral Palsy (CP) from a professional perspective in the Pakistani population.
Method: The study design included a consensus process, with a 3-round Delphi survey of multidisciplinary professionals involved in care of children with Cerebral palsy .Physical therapists, speech-language pathologists, occupational therapists, physicians, special education teachers, and psychologists were included in the study . The questionnaire included the list of ICF categories of the ICF Core Sets for children with CP. A Likert 5-point scale was used to evaluate the importance of each category, ranging from 0=not at all important to 5=extremely important. For each ICF core set a score of 4-5 given by professionals was considered to be significant
Result: Out of a total of 135 comprehensive core sets 69% were valid for the Pakistani population. 100% of the brief core sets were valid whilst 93%, 94% and 95% of the core -sets were valid in the age <6years, 6-14 years and >14-18 years of age respectively. Environmental factors scored the lowest in all rounds both in comprehensive and in brief core-sets.
Conclusion: validation process is difficult in a country where email access is limited. There is a need to change the thinking of health care professional caring for children with Cerebral palsy from a medical model to a more comprehensive model using the ICF core sets CY in Pakistan