Restrictions in the lives of Children with Epilepsy: Finding the right balance

New
ICNA
Updated
Session Type
Session subtype
Symposium
May 07, 2024
Duration
28 Minutes
Language
English
Cost
Free
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ICNC2024
Symposia: Addressing The Restrictions and Mortality In The Lives of Children With Epilepsy.

Restrictions in the lives of Children with Epilepsy: Finding the right balance
Jithangi Wanigasinghe

ICNC2024
Symposia: Addressing The Restrictions and Mortality In The Lives of Children With Epilepsy.

Restrictions in the lives of Children with Epilepsy: Finding the right balance
Jithangi Wanigasinghe

While epilepsy can be managed effectively, it may require some restrictions on the lives of CWE. Finding the right balance between protecting CWE & allowing them to have active lives can be challenging. It is important to ensure that CWEs are safe and protected from harm. This may involve restricting activities like swimming alone, playing contact sports, or climbing trees. CWEs are children, first and foremost, with the same rights and opportunities as their peers. Overly restrictive measures can lead to social isolation, decreased self-esteem, and impaired development. Encouraging physical activity, socialization, and educational opportunities can help children with epilepsy to thrive and reach their full potential.

One way to find the right balance is to involve the child and their family in decision-making and planning. This may involve developing an individualized care plan considering the child's unique needs and preferences. It may also involve working with healthcare professionals, educators, and other support services to ensure the child has the necessary accommodations and resources to participate fully in school and social activities.
Another approach is to focus on preventative measures that reduce the risk of seizures and accidents. It may also involve teaching the child and their family members how to recognize the signs of a seizure and respond appropriately.
The speaker will present a proposed guideline on reasonable restrictions in CWE.

Other lectures related to this symposium
Can we prevent SUDEP
Mortality in CWE: Analyzing the prevalence and risk factors
Mechanism of SUDEP; Results from recent clinical and basic sciences research

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