In an effort to increase the communication between local child neurology societies and the International Child Neurology Association (ICNA), the ICNA Executive Board has approved a newly formed Council of Delegates (COD). Our long term plan is to have each national or regional child neurology society send a delegate to the Council of Delegates (COD).
To date, the COD includes over 40 child neurology organizations. The mission of this COD will be to increase communication and foster collaboration among our local child neurology societies, and between these local societies and the ICNA. The delegates to the COD are determined by each local society.
The ICNA Educational Committee seeks to support speakers from ICNA to regional pediatric or child neurology conferences. The ICNA would support round trip economy airfare for a speaker to give 2 talks at a local conference. The local conference committee would be responsible for housing and registration. Please contact Prof. Kenneth J Mack for more details.
If you would like to contribute any items to future editions of the ICNA Newsletter, please let Professor Ken Mack or Professor Wilmshurst know. If you would like to make any contributions to the website ( http://www.icnapedia.org/ ), please let Prof Ken Mack or Dr Biju Hameed aware of your needs.The COD is a very exciting development for the ICNA. We truly believe that this effort will help to foster international communication and collaboration.
Kenneth J. Mack, MD PhD
International Child Neurology Association
Mayo Clinic
200 First St SW Rochester,
MN 55905
507 284 3351
507 284 0727 (fax)
ICNA Council Of Delegates
The Council of Delegates is loosely based on the WFN and will be made up of a delegate from each national or regional child neurology society.The purpose of this COD will be to increase communication and foster collaboration among the regional societies, and between these local societies and the ICNA.The delegates to the COD would be determined by each local society.
Prof Kenneth J. Mack will serve as liaison between the ICNA Board and the ICNA COD.The list has different levels of representation from major organizations to smaller groups. The COD is not a fixed exclusive group but an open committee but would not have specific “power” or voting rights over ICNA.
| Society | Delegate |
|---|---|
| Asian and Oceanian Child Neurology Association | Yoichi Sakakihara,M.D |
| Australian and New Zealand Association of Neurologists | Richard Webster |
| Baltic Child Neurology Association | Tiina Talvik |
| Barnenevrologisk Interessegruppe (Norway) | Björn Bjurulf |
| British Paediatric Neurology Association | Finbar O'Callaghan |
|
Chinese Child Neurology Society (CCNS) |
Dr Yuwu Jiang |
| Child Neurology Society (US) | Jonathan Mink |
| Child Neurology Society of Slovenian Medical Association | Zvonka Rener Primec |
| Dansk Neuropædiatrisk Selskab | Dr. Peter Born |
| Ecuador | Galo Pesantez Cuesta |
| Egyptian Neuro Pediatric Society | Ibrahim Shoukry |
| Egyptian Society of Child Neuro-Psychiatry | Ahmed Raouf Ibrahim |
| European Paediatric Neurology Society | Colin kennedy |
| Dana Craiu | |
| Hellenic Paediatric Neurology Association | Dimitrios I Zafeiriou, MD, PhD |
| Hrvatskog Društva za Dječju Neurologiju (Croatia) | Biserka Resic |
| Iberoamerican Society of Pediatric Neurology | Hugo Arroyo |
| Italian Society of Pediatric Neurology (SINP) | Prof. Alberto Verrotti |
| Korean Child Neurology Association | Dong Wook KIM |
| Nederlandse Vereniging voor Kinderneurologie | Coriene Catsman-Berrevoets |
| Paediatric Neurology and Development Association of South Africa | Andre Venter |
| Paediatric Neurology Association of Hong Kong (PNAHK) | Virginia Wong |
| Schweizerischen Gesellschaft für Neuropädiatrie | Maja Steinlin |
| Sociedade Brasileira de Neurologia Infantil (SBNI) | Marilisa Guerreiro |
| Sociedad Mexicana de Neurologia Pediatrica | Jose Antonio Infante Cantu |
| Société Européenne de Neurologie Pédiatrique (SENP) | Prof Bernard Echenne |
| Spanish Pediatric Neurology Society (SENEP) | Jaume Campistol |
| Svensk Neuropediatrisk Förening | Martin Jägervall |
| Taiwan Child Neurology Society | Kun-Lung Hung |
| Turkish Child Neurology Society |
Hasan Tekgül |
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Invitation to submit bids for the ICNC 2016
You are invited to submit a letter of intent to enter the bidding for the 2016 ICNC. A short letter from the key local medical organisers (not the conference management team) should be sent to the Secretary of ICNA (jo.wilmshurst@uct. ac.za).
The letter of intent should be no more than one page long. Selection of who will be invited to make a formal bid is initially based on previous geographical representation and your capacity to hold a meeting for between 1000-1500 delegates. You will be informed in November 2011 whether you are invited to put a complete bid together. Final bid selection for the 2016 ICNC will be made at the Brisbane ICNC in May 2012.
| International Child Neurology Congresses 1975 - 2014 | ||
|---|---|---|
| 1975 | Toronto, Canada | North America |
| 1979 | Sydney, Australia | East Asia / Oceania |
| 1982 | Copenhagen, Denmark | Europe |
| 1986 | Jerusalem, Israel | West Asia |
| 1990 | Tokyo, Japan | East Asia / Oceania |
| 1992 | Buenos Aires, Argentina | Central South America |
| 1994 | San Francisco, USA | North America |
| 1998 | Lljubjana, Slovenia | Europe |
| 2002 | Beijing, China | East Asia / Oceania |
| 2006 | Montreal, Canada | North America |
| 2010 | Cairo, Egypt | Africa |
| 2012 | Brisbane, Australia | East Asia / Oceania |
| 2014 | Iguazu Falls, Brazil | South America |
| 2016 | Bids invited to host the ICNC 2016 | ! Inviting Bids Now |
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Abstracts of the 10th International Child Neurology Congress, June 11-16, 2006, Montreal, Canada.
published in Neuropediatrics. 2006 Jun;37 Suppl 1:S1-183.
Chairman: Michael Shevell, Montreal, Canada
| MONDAY, JUNE 12, 2006 |
| TUESDAY, JUNE 13, 2006 |
| WEDNESDAY, JUNE 14, 2006 |
| THURSDAY, JUNE 15, 2006 |
| FRIDAY, JUNE 16, 2006 |
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The risk of major congenital malformations is influenced not only by type of antiepileptic drug, but also by dose and other variables, which should be taken into account in the management of epilepsy in women of childbearing potential.
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The risk of major congenital malformations is influenced not only by type of antiepileptic drug, but also by dose and other variables, which should be taken into account in the management of epilepsy in women of childbearing potential.
Use of four of the most commonly prescribed seizure-control drugs at the beginning of pregnancy is associated with a dose-dependent increased risk of major birth defects. The findings, from 33 countries worldwide published Online First in The Lancet Neurology, are the first to provide a multivariable analysis of the risks associated with individual drugs and their doses, and will be crucial in helping doctors identify the safest effective treatment for women with epilepsy considering pregnancy.
Between 0.3% and 0.7% of all pregnancies are in women with epilepsy. Most of these women need to use antiepileptic drugs during pregnancy because uncontrolled seizures can harm the mother and fetus. However, previous research suggests that epilepsy drugs (particularly valproic acid) can increase the risk of birth defects. But until now, no adequately powered studies have compared the risks associated with different doses or assessed the influence of potential confounders (other factors that can affect outcomes) such as a family history of birth defects or severity of epilepsy.
"Present guidelines caution on the use of valproic acid during pregnancy, but offer little guidance on alternative options and how to manage women whose seizures cannot be controlled by other drugs", explains Torbjörn Tomson from the Karolinska Institute, Stockholm, Sweden and international colleagues. To provide more evidence, the researchers investigated the association between the use of carbamazepine, lamotrigine, valproic acid (valproate), and phenobarbital at different doses and the risk of major birth defects detected up to the end of the first year after birth.
The study used data from the International Registry of Antiepileptic Drugs and Pregnancy (EURAP) and included 3909 pregnancies. A total of 230 pregnancies associated with major birth defects were identified by the end of the first year after birth. An increase in the rate of birth defects was noted with increasing dose for all drugs. The rate was lowest for low doses of the drugs lamotrigine (less than 300 mg per day) and carbamazepine (less than 400 mg per day).
The highest doses of valproic acid (1500 mg per day or greater) and phenobarbital (150 mg per day or day or greater) posed the highest risk to the fetus, with particularly high rates of birth defects recorded in pregnancies exposed to valproic acid 1500 mg per day or greater. The authors caution: "It should be emphasised, however, that, irrespective of which of the four investigated drugs was prescribed, the vast majority of women gave birth to perfectly healthy children."*
Additionally, the risk of defects was four times greater for offspring with a parental history of major congenital malformations. The authors say: "Our results show that dose selection is as crucial as the choice of drug...[and] gives the prescriber the possibility of assessing how teratogenic [ability to cause birth defects] risks at that dose compare with the risk associated with alternative treatments at various doses." In a Comment, W Allen Hauser from Columbia University, New York, USA says: "The findings are important to the clinician treating people with epilepsy because they provide specific information not only on the drug but also on the dose.
It is easy to recommend against use of a specific drug (valproic acid, for instance) because of a higher risk of malformations, but if seizure control is not possible with alternative therapeutic regimens, such recommendations are difficult to implement. The data provide another reason for use of the lowest dose of a drug associated with optimum seizure control. Incidence of major congenital malformations associated with a low dose of a higher-risk drug might be lower than that associated with a high dose of a lower-risk drug."
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